How is my privacy protected?

The CLSA is committed to protecting the privacy of participants, safeguarding the confidentiality of personal information, and ensuring a secure environment for all information collected as part of the study.

The CLSA meets this commitment by:

  1. Establishing clear principles and policies for the protection of personal information, emphasizing high standards of organizational, technical and physical security practices and policies;
  2. Communicating privacy protection policies and practices to CLSA staff;
  3. Restricting access to personal information to a limited number of CLSA personnel who have authorized access for research purposes;
  4. Ensuring the CLSA research protocol is regularly reviewed by the research ethics boards of the institutions involved;
  5. Designating a member of the Scientific Management Team to oversee the study's privacy protection policies and practices and working in collaboration with the Canadian Institutes of Health Research (CIHR) Advisory Committee on Ethical, Legal and Social Issues (ELSI) for the CLSA to develop them.
  6. Ensuring that CLSA staff members are trained in the principles and practices of personal information protection and requiring all staff to sign an agreement to protect the privacy and confidentiality of participants;
  7. Ensuring that the CLSA's policies and practices are consistent with the best national and international standards of privacy protection in health research and legislative requirements.

Privacy Policy

The CLSA has implemented policies and procedures consistent with the principles described in CIHR Best Practices for Protecting Privacy in Health Research, the Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans, and the Canadian Standards Association Privacy Code. The CLSA Privacy Policy has been developed in collaboration with the ELSI committee.